My life with NF2 - My book Who Am I gives a patients perspective of living with Neurofibromatosis Type 2 (NF2). It does include some NF2 basic facts and information that is indispensable to anyone wanting to learn more about the disorder but it mainly gives the day to day perspective of what life with this disorder and how NF2 has affected the decisions in my life be they good or bad ones!
Reading the book you will see the changes I went through from a healthy childhood to the person with many challenges I have today. Some of these experiences will make you cry; others will make you laugh or smile.
- Jane
From Chapter 1 Hopefully this book will be informative and help you understand our living with NF2, how we NF2ers struggle on a daily basis and giving glimpses of turning our chores into challenges. Most of all suggestions on diet and exercise to manage our NF2 until a cure is found for NF2.
Also, in the chapters on diet is information on G-Tube feeding as I am also a G-Tube person and blend up real food.
-Jane
The printing of the book is available direct from the author and it is NOT available in bookstores. CASH, CHECK OR MONEY ORDER in U.S. Currency. Cost of shipping is included in the cost of the books.
Jane Wilson-Bent
Address: 2501 Mt. Pleasant St. Apt #16, Burlington , IA 52601-2121
Email: poetgirl22002@yahoo.com